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Posted: Fri Oct 20, 2006 12:31 pm
by red
I really dont wnat to be one of those people that tell you bollox about your disease.. so excuse me pleaes - but I do feel obliged to tell you this:
my mum was diagnosed with vitaligo some years ago. she put up with it... etc and as she has psoriasis thought 'oh bum' but then a friend of hers also got the dx and he went to a skin specialist, who said he had been wrongly diagnosed, and it was a fungal disease that affected the pigment, treated it with whitfield ointment which is benzoic acid and after some time cured. So he told my mum, who tried this too, and hers has gone too.
I expect you have seen a skin specialist, and expect you have eliminated this already - so sorry if i am being useless, but could not resist tellig you incase it made a difference.
Posted: Fri Oct 20, 2006 12:34 pm
by Andy Hamilton
red wrote:I really dont wnat to be one of those people that tell you bollox about your disease.. so excuse me pleaes - but I do feel obliged to tell you this:
my mum was diagnosed with vitaligo some years ago. she put up with it... etc and as she has psoriasis thought 'oh bum' but then a friend of hers also got the dx and he went to a skin specialist, who said he had been wrongly diagnosed, and it was a fungal disease that affected the pigment, treated it with whitfield ointment which is benzoic acid and after some time cured. So he told my mum, who tried this too, and hers has gone too.
I expect you have seen a skin specialist, and expect you have eliminated this already - so sorry if i am being useless, but could not resist tellig you incase it made a difference.
Quite interesting, no not seen a skin specialist have seen three doctors who just glance at it, they never really seem to know quite what it is or at least don't instill much faith in me that they do. Worth a go at tryig whitfield ointment not going to hurt.
Posted: Fri Oct 20, 2006 2:18 pm
by red
hmm well this whitfield ointment is only available if ready made - so not all chemists have it.. and last my mum got it from Boots but had to order alot.... then apparently its like treating atheletes foot.. you have to keep at it.
but she said it was clear it worked straight away as the affected areas were cured immediately - just it came back and she had to retreat etc until completely gone. of course it did not change the tan pattern.. that stayed until the tan bits faded in winter... if you see what i mean.
If I were you i would try to get hold of some of ths ointment.. cant hurt, and you you demand to see a specialist your gp is obliged to refer you - but of course this could take some time - but might still be worth doing. Afterall, I know 2 people who were wrongly diagnosed. Hope this is helpful
Posted: Fri Oct 20, 2006 5:04 pm
by Pilsbury
Dave wrote: In at least some people, it is the genes that you inherit which predispose you to developing the condition. A study of identical twins, which the Society helped to fund, supported this theory, and there is extensive evidence from several larger studies that some vitiligo is inherited."
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I think the important word here is predisposed, doesn't that mean you have a higher than normal risk but still not definate.
I spent 6 months under a dermatoligest and was told mine was vitaligo but if there are no side effect to this ointment i might have a bash at it anyway.
Posted: Sat Oct 21, 2006 3:46 pm
by heylittledoggie
Thanks for the great welcome Shirley!!
I hope to learn a few tricks.
Vitiligo is very odd, when I first got it I had just had a terrible bout (one-off and never repeated thankfully) bout of flaky skin on my face and hands. It was literaly like my entire face was coming off before me over and over!!
I had some steroid cream, and it was shortley after this that vitiligo kicked in.
Of course as a teenager I was horrified about the patches and carefully covered them, now I don't care at all. Some benefits to the advancing years ...I guess..?